Resources for Parents
- Cleft Palate Foundation - A non-profit organization who works to improve the quality of life of those impacted by facial birth defects.
- Florida Cleft Palate-Craniofacial Association - A state-wide association of health care specialists and parents.
- Wide Smiles - A parent organized website offering a chat room, newsletter, and family stories.
- The National Craniofacial Association - A non-profit organization dedicated to helping U.S. children and adults who have severe craniofacial deformities.
- AboutFace USA - A non-profit organization dedicated to providing information, emotional support and educational programs to individuals and families affected by facial disfigurements.
- Pierre Robin Network - An organization created by a mother of a son with PRS and made up of parents, relatives, caregivers and professionals.